People who hear me on the radio, listen to my podcasts or read my blogs are certainly aware of my passion for music. But first and foremost I am a mother, and without a doubt the main focus of my life is my kids. Not a day goes by where I don’t feel extremely thankful for their health and happiness.
My heart breaks when I hear of families that have to deal with terminal health issues, especially those involving sick children. I can’t imagine the pain of knowing your child is suffering and/or might not make it to their next birthday. So, when I heard about a young toddler “Lucy” (her name is an alias to protect her privacy) stricken with such a horrible disease I felt compelled to share her story.
Lucy has a genetic disease called SCA7 (Spinocerebellar Ataxia 7) which will eventually shut down all her abilities to walk, see, talk, breathe, think, and pump blood to her heart thus killing her. As if that isn’t heartwrenching enough – she is part of a large but very close foster family in Oak Park, and one of her brothers wrote a very touching story about her situation.
You can help Lucy and the 150,000 Americans and their families who suffer from the devastating effects of Ataxia. Your participation in the 2009 Laps For Lucy this Saturday morning will bring the world one step closer to a cure for Ataxia. The race is at Oak Park River Forest High School Track (Lake Street and East Avenue, Oak Park, IL). All Proceeds go to the National Ataxia Foundation.